In the midst of life’s unexpected twists and turns, music often serves as a refuge—a means of processing emotions and experiences that defy words. For me, the creation of the EP No Other Life was born out of such challenging times, where music became my conduit for understanding and coping.

One track from the EP, “Disbelief,” holds a particularly potent resonance for me. It captures the overwhelming sensation of watching one’s carefully laid plans crumble, akin to witnessing glaciers crashing into the sea while standing alone on a melting iceberg. It’s not a commentary on climate change, but rather a metaphor for the incompleteness that arises when our expectations are shattered.

Life, it seems, has a way of defying our plans. From a young age, we’re taught to envision our futures—careers, relationships, even the number of children we’ll have. Yet, as we journey through life, we soon realize that reality seldom aligns with our projections. And while it’s easy to mourn the absence of what we had envisioned, there’s also beauty in embracing the unexpected paths life presents us with.

Living with Parkinson’s disease, particularly at a young age, further underscores the fragility of plans. There’s no set definition for “young onset,” but it often means confronting the stark reality that the life you envisioned may no longer be attainable. Tasks that once seemed simple suddenly feel daunting in the face of a diagnosis that alters the trajectory of your life.

In my own journey with Parkinson’s, I grappled with the need to swiftly adapt to a new reality. As someone who thrives on plans and structure, this sudden upheaval was disorienting. Yet, amidst the uncertainty, I found solace in the realization that while my plans may have been shaken, my capacity to make a difference remained unchanged.

Each of us is on our own unique journey, navigating the twists and turns of life with varying degrees of resilience. The symptom list of Parkinson’s is vast and unpredictable, serving as a reminder that life is a delicate balance of unforeseen challenges and unexpected triumphs.

In sharing my experiences, I don’t purport to offer answers or solutions. Instead, I invite listeners to engage in introspection—to listen to their own thoughts and reflections. Life is fleeting, and it’s all too easy to allow it to pass us by amidst the chaos of shattered plans.

Remember, friends, you have no other life but this one. Embrace its unpredictability, cherish its moments, and share your unique story with the world.

Art Credit: William Holbrook Beard: Bear Stung by Bees, 1865-1895
Public Domain, National Gallery of Art

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Disclaimer: The podcast episode summaries of “Upstaged” found on this site are fully machine-generated, beginning with a machine transcription from my improvised audio file, which is fed into ChatGPT 3.5 utilizing the following prompt:

“Please read this and come up with a four paragraph article which adds none of your knowledge, but simply summarizes his thoughts about awareness. Do not reference the closing tags at the end about his website, listening to the music file, etc. Speak in the third person, and at a high school reading level.”

As many website designers move into fully writing posts through AI, I think it’s important that we tread lightly and explain the usage when it appears. I have spoken before about the “Brains vs. Hands Dilemma” and argue that my usage for this purpose is a case of more hands (i.e. I could have written a summary if I’d wished to) and not one of more brains (i.e. if I asked the machine to do something my own brain weren’t capable of).  In this case, my acceptance of the tool is not one of deception but of convenience, in the name of taking less time on this routine part of presenting my stories to a wider audience. The transcripts are available for greater accessibility.

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